VITILIGO Friends
A Vitiligo Support Community of FRIENDS
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151 Comments
Hello Walter, Our Boston conference where questions will be addressed is coming up on July 31. I am not sure where you are but hope that you can attend. Check the NEWS page for details and here is the FLYER:
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Walter Leyva Jr
03:38 PM on July 08, 2010
I need help with Vitiligo. What is the best cure for this disease.
Reply
anonymous
01:38 PM on June 29, 2010
Thank you for this word of encouragement.
Most of us I am sure can also say like you - "Some days I am ok with it and some days I hate it. I am sure there are many like me." It is a struggle but with GOD helping us we CAN make it. Like you said we have a JOB to do. - "For those of you who are confortable with vitiligo, encourage others that are not." Just know that it will take TIME......and those of you who are not there yet in your acceptance, Cawanda has encouraged us today.- "just be patient with yourself and please try not to let the best years of your life pass you by in mourning for having vitiligo."
I am personally encouraged to know that my uniqueness profounds my beauty! I am also encouraged to know that there are great people out there like Cawanda and so many others that stand with me in this VIT walk through life. Let us touch others, let them see our inside and NOT focus so much on the outside. I am truly blessed by what God is doing in and through people with VIT, let's CHANGE our world..let's make a difference
Most of us I am sure can also say like you - "Some days I am ok with it and some days I hate it. I am sure there are many like me." It is a struggle but with GOD helping us we CAN make it. Like you said we have a JOB to do. - "For those of you who are confortable with vitiligo, encourage others that are not." Just know that it will take TIME......and those of you who are not there yet in your acceptance, Cawanda has encouraged us today.- "just be patient with yourself and please try not to let the best years of your life pass you by in mourning for having vitiligo."
I am personally encouraged to know that my uniqueness profounds my beauty! I am also encouraged to know that there are great people out there like Cawanda and so many others that stand with me in this VIT walk through life. Let us touch others, let them see our inside and NOT focus so much on the outside. I am truly blessed by what God is doing in and through people with VIT, let's CHANGE our world..let's make a difference
Reply
Cawanda Moore
06:52 PM on June 28, 2010
Hello my Vitty Friends!! I posted this today on vitilgofriends.org. Valarie asked me to come here and post as well. I hope you enjoy my thoughts today. Be blessed and encouraged in your Vitilgo. Remember be of good courage!!
I know that our acceptance of vitiligo has us divided however, let us be undivided in that we all have this disease/illness/disorder.
I personally am in between in my acceptance. Some days I am ok with it and some days I hate it. I am sure there are many like me. For those of you who are confortable with vitiligo, encourage others that are not. For those of you who are totally not there yet in your acceptance, it will come - just be patient with yourself. But please try not to let the best years of your life pass you by in mourning for having vitiligo.
A friend told me the other day your uniqueness profounds your beauty! I totally agree. Michael Jackson touched so many people because he spoke a universal language. A language so many people understood. I hope that we can one day speak that same universal language about vitiligo. It is unique and so are you and I. In this uniqueness, we must live!!!
Have a blessed day, your Vit Friend, Cawanda
I know that our acceptance of vitiligo has us divided however, let us be undivided in that we all have this disease/illness/disorder.
I personally am in between in my acceptance. Some days I am ok with it and some days I hate it. I am sure there are many like me. For those of you who are confortable with vitiligo, encourage others that are not. For those of you who are totally not there yet in your acceptance, it will come - just be patient with yourself. But please try not to let the best years of your life pass you by in mourning for having vitiligo.
A friend told me the other day your uniqueness profounds your beauty! I totally agree. Michael Jackson touched so many people because he spoke a universal language. A language so many people understood. I hope that we can one day speak that same universal language about vitiligo. It is unique and so are you and I. In this uniqueness, we must live!!!
Have a blessed day, your Vit Friend, Cawanda
Reply
anonymous
12:21 PM on June 22, 2010
Hi Norene,
Looking forward to seeing and purchasing your book at the Boston gathering. Our secretary will have a spot for you to set up your books. Looking forward to hearing your story. God Bless!
Looking forward to seeing and purchasing your book at the Boston gathering. Our secretary will have a spot for you to set up your books. Looking forward to hearing your story. God Bless!
Reply
Norene L Willis
09:48 PM on June 21, 2010
I too am a Vitiligo person, I wrote a book on this skin disorder called Living Life in Vitiligo, It's a great book, I wrote it to HELP others who are still hurting and who are still hiding behind closed doors. and to HELP EDUCATE the public. Get the book by going to website : norenelwillis,com or just go to google.com and key in my name. God Bless Norene .
Reply
Valarie - Your VITFriend Host
07:35 PM on May 07, 2010
Hi Carol,
It was so good chatting with you the other day. I hope that you had a chance to really visit our webpages and that you will make plans to join us in July. We are also on FACEBOOK if you search for vitfriends, where there is also more PHOTOS.
It is amazing how all of our stories are so simular. Yours sound just like mine. The key is learning to really LOVE ourselves in the skin that God has given to us. Blessings to you and hope that we can talk again.
Your FRIEND,
Valarie
It was so good chatting with you the other day. I hope that you had a chance to really visit our webpages and that you will make plans to join us in July. We are also on FACEBOOK if you search for vitfriends, where there is also more PHOTOS.
It is amazing how all of our stories are so simular. Yours sound just like mine. The key is learning to really LOVE ourselves in the skin that God has given to us. Blessings to you and hope that we can talk again.
Your FRIEND,
Valarie
Reply
Valarie - Your VITFriend Host
07:23 PM on May 07, 2010
Hi Sophia,
It is so sad when people say that they were teased for something that they had NO control over. I love the descriptive words that you use - WONDERFUL and BEAUTIFUL. You really make my heart sing, I am so proud of you. When we gather in Boston this summer our theme is "See me for who I am" and that is just what we are saying as we try hard to show our inside and not focus on the outside.
Bless you!
It is so sad when people say that they were teased for something that they had NO control over. I love the descriptive words that you use - WONDERFUL and BEAUTIFUL. You really make my heart sing, I am so proud of you. When we gather in Boston this summer our theme is "See me for who I am" and that is just what we are saying as we try hard to show our inside and not focus on the outside.
Bless you!
Reply
Carol
11:08 AM on April 26, 2010
Hi Valarie it was a pleasure meeting you last Saturday. Hi everyone, my name is Carol. It has been five years since I was diagnosed with Vitiligo. It was very difficult for me at first , but over the years I have learn to live with it. It is nice to hear other people stories.
Reply
Sophia
06:46 PM on April 21, 2010
Valarie - Your VITFriend Host says...
WELCOME!!!!
So do you have Vitiligo? Please share you story with us.
Hi! My name is Sophia and i have had Vitiligo since i can remember. When i was little i used to get teased about it. Things are way better now and no one says anything and i feel wonderful and beautiful! To me I always thought looks aren't all that matters. It's what's inside! People have relized that ,and i am just so darn happy! It makes me very sad when i hear about someone who suffers with people constantly telling them rude things. I'm 11years-old.
