VITILIGO Friends

A Vitiligo Support Community of FRIENDS

Valarie


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Joined Oct 11 2007
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FEMALE
boston
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Sisters Building Sisters Built to Uplift Encourage and to Motivate Women
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14 Comments

Reply ockso mahara
11:09 PM on January 18, 2012 
X)....thks...greetings and love......to one and all.......
Reply precious300
02:03 PM on August 12, 2011 
Hello My Dear, (preciousmoses17@yahoo.co.uk ) How are you today and how is life moving over there? i hope fine. My name is precious, It is my pleasure to view your profile today and after going through your profile in (www.vitfriends.com) and I became interested in you... please I will like to know you more better... so I will like you to reply this mail with your email address direct to my email not in the site, so that I can give you my picture for you to know whom I am. Here is my email address (preciousmoses17@yahoo.co.uk) believe we can move from here... remember that color or distance does not matter but love matters a lot in life... so I am waiting impatiently to hear from you soonest. Thanks and have a wonderful day from precious (preciousmoses17@yahoo.co.uk ).
Reply Poweka
05:20 PM on January 20, 2011 
Valarie,

Just stopping by to show some love and support. Love the look of the site! I don't get here often but I wanted you to know that I most definitely am supporting what you're doing because as an AA with vit it is a tremendous task just trying to get other AA's to understand what vit is and how it affects the mind, body and spirit but I keep pressing and hopefully one day with a real cure we won't have this to wonder or worry about any longer. Be Blessed and keep doing what your doing!
Reply adera4u
11:32 AM on January 17, 2011 
Hello
My name is Adera,after reading your profile,i will like to have a relationship with you, can you write me at(adera.lsaaq@gmx.com)
we can start from there, also i will send you my picture, i will be waiting because i have something VERY IMPORTANT to tell you, take care and lots of
love,God bless
(adera.lsaaq@gmx.com)
Adera.
Reply Madhav Gudi
09:59 AM on August 04, 2010 
Swati having 50% of vitiligo on her body.. first it appeared on hands & foot now on the face also......... some doctor opinion is negative & some positive........
Reply Madhav Gudi
11:00 AM on August 03, 2010 
That Doctor name is vaneeta i think.... i saw photos so
Reply Madhav Gudi
10:15 AM on August 03, 2010 
Hello madam...... its my pleasure to be here..
Reply Poweka
01:44 AM on July 11, 2010 
Just wondering are you a supporting member of VSI? I don't see many AA people on there since they started the fee. I'm wondering is it worth my time since there really aren't any people of AA descent on their board any longer. There are no new posts in the AA forum for this entire year.
Reply Poweka
12:48 AM on July 10, 2010 
Maybe I can make the next event. Have you thought of making a forum here so people can interact? Dealing with vit can be super tough sometimes and I know there are many who would like to talk with others about their concerns.
Reply Poweka
09:47 PM on July 08, 2010 
Valarie,

Hey lady it's been awhile since we've spoken. I received your email and thought I would renew my profile here. So here I am... Love the site, you are doing great work. If there's anyhting I can help with please let me know. I really mean that too! Talk to ya!
Reply Valarie
05:28 PM on December 07, 2009 
Hi Cneshia,

I have visited vitiligo.ning and I will again. God Bless!
Reply Cneshia
09:07 PM on December 06, 2009 
Thanks for the comment.. I've havd vit for 10 years. Check out vitiligo.ning.com.. It is where I am mostly. Please come by and create a page. Feel free to visit my page I have a lot of pictures!
Reply Valarie
05:50 PM on December 06, 2009 
Hi Ben,

You have had VIT for a long time and like you said it is about learning to deal with it because YES it is a part of who we are. Prior to be getting it, I knew No one in family with it. My husband however has come down with it and it has been three year for him. Funny enough the treatment is working for him but nothing worked for me. I am married as well and have two boys. Let us continue to support each other. Kind WORDS go along way. Please take time to view our photos if you have not already do so. God Bless!
Reply Ben
04:38 PM on December 06, 2009 
Hi Valarie
I've had vitiligo since I was 2 or 3. It was very hard as a child, but I've learned to live with it and the stares. It's a part of me and I wouldn't change it. The most annoying thing is that I sunburn so easily. I live in Ecuador on the equator and at 10,000 feet high. The sun is super strong here and I have to be careful to put on sunscreen everyday.
Thank you for the compliment about my family. My wife and I have been married almost 7 years and have 2 boys, 5 and 2. No one else in my family has vitiligo that I know of.
It's nice to join a support system here. Thanks for starting this

Ben