VITILIGO Friends "VITFriends"

A Vitiligo Support Community of FRIENDS

2015 Conference Feed-Back

 

Our Conference was a great success! Here are some of the comments we have received:

N.Y. - Being able to interact with others who have vitiligo. Loved the camaraderie. Also hearing stories that echoed my experiences.

MA - I liked that the conference was well organized. I liked the Speakers, PowerPoint presentation, Vendors, and give away.

N.Y. - Planned very well and organized

R.I. -This was the first time being around anyone with Vitiligo since getting it. I was so happy when I walked into the conference...I almost cried.

MA  -  Meeting people like me and the welcoming enviroment

N.Y. - Looking forward to June 25, 2016

R.I. - We need to remember to be kind. Some of us are in the beginning of our journey and negativity will push us away.

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7th Annual Vitiligo Conference

 

Theme: My STRENGTH - Mind, Body and Soul...

 

Friday, July 31 -   to   - Sunday, August 2, 2015

 

 

Phillips Old Colony

800 Morrissey Blvd, Dorchester, MA

 

Speakers:

Dr. John Harris, MA

UMass Medical Center & Vitiligo Clinic

Alex Augustin, FL

Todd Meadows, CT

Shazaad Games, NY

VStyle 2 Tone, FL

 

Mistress of Ceremonies: Cawanda Evans, NC

         (NOTE:  Same Day Registrations will incur an EXTRA $10.00 service fee)

REGISTRATION (Full Weekend is: Friday/Saturday/WALK/Tee
Tee Shirt Size Required

 

 

 

 

 

 

 

 

 

 

Weekend Highlights:

Friday-8:00pm-11:00pm: Meet, Greet, Dinner, Video/Discussion and Bowling

 

Saturday-9:00am-4:00pm: Breakfast, Lunch, Snack, Speakers, RAFFLE and Vendors

Sunday-8:30am-10:00am: WALK for Vitiligo Awareness, Castle Island

 http://www.bostonharborwalk.com/placestogo/location.php?nid=6&sid=44

 

 

VISIT our DONATE page for WALK ONLY Registration

http://www.vitfriends.org/donate.htm

 

Sunday Brunch -12:00pm - Freeport Tavern, Dorchester, MA

 

 

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 HOTEL Information:

1. Boston RAMADA Hotel - 800 Morrissey Boulevard Boston, MA 02122 - 617-287-9100

http://www.ramada.com/hotels/massachusetts/boston/ramada-boston/hotel-overview

Special Rates: $155.00per night (includes: Full breakfast, Tax and Fees) Rooms held under VITFriends UNTIL July 15

FREE shuttle service from: Airport, Train/Greyhound Stations. TALK to the hotel about the shuttle schedule.

 

2. Best Western Hotel - 29 Hancock Street, Quincy, MA, 02171 - 617-328-1500

http://hotelbargain.org/hotel/15268?s1=goog&s2=BP-BW-E&s3=hotel&th=main&kw=Best+Western+Quincy+MA

Special Rates: $163.00per Night (inludes: Breakfast, Tax and Fees) Rooms held under VITFriends until July 15.

FREE shuttle service from: Airport, Train/Greyhound Stations. TALK to the hotel about the shuttle schedule.

 

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Vice President Pat (NYC)   -  President Valarie (Boston, MA)

Looking forward to seeing you with us!

 

 

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2015 Conference Advertising

Place an AD in our program booklet.

$75 – Full Page Ad
$50 – Half Page Ad
$25 – Business Card Size Ad


$25 – Short Greeting (Includes Name plus 1sentence up to 75 words)            

Deadline July 15, 2015
Send Ads or greeting to: vitfriends01@aol.com 

 

 

 

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Here's a look back:
 
 
6th Annual Vitiligo Conference

Theme

"Designed to be Seen"


July 25 ~ 27, 2014

At

Bethel Gospel Assembly
The Heart of Harlem, NY
 
 
Registration closes on July 20, 2014 - Additional $10.00 is charged at the door. (The additional charge does NOT apply to BGA members)

 

Patricia Rossy, Vice President, NY-VITFriends Leader

Host

  

 

COME join us! 

 

Register before JULY 10, 2014 

 Special gift for our EARLY registrants!

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Registration: (Does NOT includes hotel)

**Registration closes on July 20, 2014 - Additional $10.00 is charged at the door. (The additional charge does NOT apply to BGA members)

Conference COST:

 

View the various OPTIONS: Conference ONLY or Conference and Saturday evening DINNER.

 
Registration
 
 
 
Registration closes on July 20, 2014 - Additional $10.00 is charged at the door. (The additional charge does NOT apply to BGA members)

 

Special Guest to include:

Dr. Richard Huggins, Detroit, MI

Caitlin MeCabe, Long Island, NY

Millicent Meadows, Hartford, CT

Richard Olaya, Clinton, NJ

Rev. Perry and Gwen Riley, Houston, TX

Yan Valle, Vitiligo Research Foundation, CEO - Moscow, Russia

Join Us

(SELECT One or ALL - See Registration Information)

Friday - Meet, Greet, Dinner, Vocalist, Speakers and Drama

Saturday - Full Conference Day (Breakfast, Lunch and Snack)

Sunday - Worship Experience at Bethel Gospel Assembly

(Our vitiligo family presented to the congregation)

 

Added features to include: Drama by BGA Real Life Theatre Company (http://reallifetheater.org/about/); Community Outreach, Short Video and so much more.....

 

 

NOTE: If you are experiencing budget difficulties, but would love to attend our conference, here is an option for you. Pay a $50.00 deposit to hold your spot and the balance before July 20 or email us. This deposit is NON-Refundable.

 

 

Accomodations: Sheriden Hotel, Bronx, NY @ 155.00 per night: http://sheridanhotelny.com/

Accomodations: Heart of Harlem B & B (SOLD OUT)ttp://www.harlembedandbreakfast.com/

 
 
Looking forward to seeing you at our 2014 VITFriends FAMILY time together!
 

Registration

Conference Schedule:

Friday 6:30 - 10:00pm:

Greet...Dinner...Vocalist....Speakers....Drama...Special Guest from VRF, Moscow, Russia

 

Saturday 9:30 - 4:00pm: (Contenential Breakfast/Lunch/Snack)

Meet...Greet...Dermatologist...Street Walk...Lunch...Speakers

 

Sunday 11:30am: Bethel Gospel Assembly Worship Experience

Bishop Carlton Brown, Senior Pastor

 

HOTEL Info: (Not included in registration)

Sheriden Hotel, Bronx, NY - $155.00per night - http://sheridanhotelny.com/

Harlem Bed & Breakfast, Manhattan, NY - $140.00per night (SOLD OUT) http://www.harlembedandbreakfast.com/

Reminder:
Registration closes on July 20, 2014 - Additional $10.00 is charged at the door.
(The additional charge does NOT apply to BGA members)

Registration closes on July 22, 2014 - An additional $10.00 will be charged at the door. (This additional charge does NOT apply to BGA members)

COME join us!

 Conference Quote:

"God does NOT owe us an explanation about out Vitiligo."

  - Rev. Perry Riley, Houston, TX

 

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Our 2013 VITFriends Conference was an amazing success!

Here is a clip: http://youtu.be/KrvkboUsvIw

 

Here’s a few photos to wet your appetite, see our photo page for more...

:

Detroit, MI walks with Boston, MA

Dr. Huggins and Stacy, Detroit, MI

Logan International Airport in the background

 

Houston, TX walks with Boston, MA

 

Washington, DC and Long Island, NY  -  WALK for Vitiligo Awareness!

 

 

NEWS!!!!!  

Our Sunday session announcement was well accepted:

VITFriends 2014 conference will be in New York City only block from the famous Apollo Theatre.       So, make your plans NOW, the date will be July 25, 26 and 27, 2014

 

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5th Annual VITILIGO Conference Program

Theme

"We are Custom Designed"

 

July 26, 27 and 28, 2013

 

Special Guest to include:

Dr. Harris, UMass medical Center; Worcester, MA

Patricia Mills; Brooklyn, NY

Cawanda Evans; Charlotte, NC

 

Special Feature: Diane Koury, Dermablend Specialist, NYC

http://www.youtube.com/watch?feature=player_embedded&v=7yiLCrKtqg0

 

Dr. Richard Huggins, Detroit, MI

Telisha Gibson, Brooklyn, NY

.... and more .....

 

  Friday: 8:00 pm - 11:00 pm - Meet/Greet/Dinner/Bowling*

(Bowling optional and a seperate charge*)

  Saturday: 9:00 am - 4:00 pm - ALL DAY Conference  (Breakfast, Lunch and Snack included)

  Sunday: 8:00 am - 10:00 am - "Get out and WALK"

http://www.bostonharborwalk.com/placestogo/location.php?nid=6&sid=44

A Casual 2K Walk for VITILIGO

Pledge your support for this Support Group.

(if you cannot walk please make a donation)

http://www.vitfriends.com/donate.htm

  Sunday: 12:00 pm - 2:00pm - Sunday Brunch/Closing Circle

Remark: Rev Perry and Gwen Riley, Houston, TX

Perry and Gwen, Houston, TX

 

...JOIN us for a time you will NOT forget...

 

REGISTRATION after June 26:

Registration

 

Registration Close date: July 25, 2013

 

HOTEL Information:

Boston RAMADA Hotel - 800 Morrissey Boulevard Boston, MA 02122 - (617) 287-9100)

SPECIAL RATES: $148.00 (includes: Full breakfast, Tax and Fees)  Rooms held under VITFriends UNTIL July 15

FREE shuttle service from: Airport, Train/Greyhound Stations. TALK to the hotel about the shuttle schedule.

 

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 A LOOK back at 2012

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VITFriends Conference 2012

 

Theme 

 

 

Can you SEE me now

Date:  July 28, 2012       -   TIME:  9:00am - 5:00pm

 

ALL - DAY - Together

 

VENUEPhillips Old Colony House

780 William T Morrissey Boulevard, Boston, MA 02122

(617) 282-7700

http://www.phillipsboston.com/

 

Main Speaker

Dr. John Harris received his MD and PhD degrees in 2005 at the University of Massachusetts Medical School (UMMS) in Worcester, MA. His PhD research was focused on understanding how the immune system causes juvenile diabetes. He decided to take what he learned while studying juvenile diabetes and apply it to better understanding what causes vitiligo. He did his dermatology residency and postdoctoral research training in 2006 at the University of Pennsylvania (UPenn) in Philadelphia, PA. During this time he developed a new mouse model of vitiligo to allow him to study how vitiligo works. Once he graduated from UPenn, he accepted a position back at UMMS as an Assistant Professor of Medicine in the Division of Dermatology, and he now sees patients with vitiligo and does research on vitiligo. His current focus is on the development of new vitiligo treatments using his mouse model and patient tissues, and he is also running a clinical trial to test a specific new treatment for patients with vitiligo.

Chanel McCollough is a 2010 graduate of Howard University with a BA in Fashion Merchandising with a specialization focused in Sociology. Chanel is a vitiligo person who has experienced drastic pigment loss over the past fourteen years. Chanel is a motivational speaker who discusses art and visual culture, emotional equanimity, and self identity while giving voice to the needs of young women with physical impairments. She is from Washington, D.C.

For the first time every - We are bringing LAUGHTER to our conference with - Ms Dorothea Keeling, who is a College Professor. Dorothea is the President and Founder of L.A.U.G.H.Institute, in Boston, MA. Ms Keeling specialty is in the area of: "The Science of Laughter for your Health." http://www.laughsrus.com/community

Audrey Grant-Lubin is a wife and a mother and she has had vitiligo six years. In her desire to manage her condition, Audrey has developed techniques that she will demonstrate to us of ways to cover up with make-up. Audrey will share her personal journey with vitiligo.

Camille Hankey is a Certified Licensed Massachusetts Massage Therapist. The National Institute of Health reports that emotional distresses along with several other factors are triggers to vitiligo and the way that it progress. Experts estimate that upwards of ninety percent of diseases today are stress related. While eliminating anxiety and pressure altogether in this fast-paced world may be idealistic, massage can, without a doubt, help manage stress. Ms Hankey will share stress relieving techniques as well as offer foot massages.

QUESTIONS:  Please send your questions for our speakers. vitfriends01@aol.com This 45-minutes Q and A session will be recorded LIVE...

 

RAFFLES........Door Prizes........Surprizes

 

Registration:

Regular Registration: $50.00/person ONLINE

Registration Deadline for Catering service: July 25, 2012

Walk-in Registration: $55.00/person

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Photos from - Conference 2011

http://www.facebook.com/?ref=home#!/media/set/?set=a.2249242480635.2134342.1535413669

 

Our 2011 Conference - Opening Speaker

Boston City Councilor - Rob Consalvo

brings

greetings and a Resolution from the Boston City Council

 

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Our 2011 Conference - QUICK comments from attendees:

Constance Ozo, Nigeria, Africa. "This was wonderful....."

Gwen Riley, Houston, TX. "Please let me know as soon as you get the date scheduled for next year so that we can plan our trip."

Jessica Keith, Boston, MA.  "I have learned so much......."

Obi Mogor, Hyde Park, MA.  "Young people should come to this....."

Rev. Perry Riley, Houston, TX. "my heart, soul, and thoughts are still in Boston. My wife and I were just speaking this morning and we're both still on a spiritual high."

Much more details to come.....

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Shades of Me

2011 VITFriends Conference & Banquet

July 30 and 31st

Phillips Old Colony House

780 William T Morrissey Boulevard, Boston, MA 02122

(617) 282-7700

http://www.phillipsboston.com/  

Registration for Saturday & Sunday Conference is ONLY $40.00 per person. $50.00 at the door.  Sunday ONLY is $20.00 at the door.

                                                                                          

Guest Speaker - Day 1

Dr.  Veneeta Sheth - Dermatologist, Brigham & Women’s Hospital,  Boston, MA

Rob Consalvo, City Councilor, Boston, MA

 

Others Speakers

Miss Gibson, Brooklyn, NY   -   A youthful perspective of Vitiligo

Mrs. Grant-Lubin, Boston, MA   -   Make-Up as an option

 

Banquet

Saturday, July 30th  

7:00pm  - 12:00am

Dinner, Discovery and Dancing!

Adults      $50.00 / Children    $25.00

 

Guest Speaker - Day  2

Rev.  Perry Riley

Pastor of Grace Cathedral

Houston, TX

Vocalist - Lois Commodore - http://www.youtube.com/watch?v=wwQUsPkopFs

COME and support our VENDORS

 

** DONATIONS: Please remember to bring us your old - unwanted cell phones. Help our Environment! 

     

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2010 Conference COMMENTS

The format and the structure of this conference was great

This was empowering, I THANK you!

This group has opened my eyes not only to my skin condition but it has also opened my eyes to God.

This was professionally done, thanks!

I got my wife back when she took off the make-up

I will HUG more people with Vitiligo

The doctor, the president, and the handout everything was incredible

I see myself ugly, I look like a spotted cow, I have a sad face, and this is hard for me.

Too much of the steroids creams can thin out the skin

It's not the cover of the book, it's what's inside

I will stand TALL with greater self-esteem

I want to keep in contact with everyone

Don't let people put you in a SPOT...you already have SPOTS

I want people to know that this is NOT a disease; it is a disorder of the blood cells.

I admire the support shown by the spouses.

I really saw my wife's Vitiligo when I took a photo of her several years after she had had the condition for a while

NO children under 12 should attend...only if they have the condition

Dr Vaneeta was beautiful, informative and the hand-out was great!

Miss Norene was just excellent.

I will approach people with the condition NOW instead of starring

You need a bigger space.......looks like you are growing

I WILL look at people with Vitiligo differently

I am so happy my wife (Our President) stop wearing the makeup, because I love her anyway...anyhow...with or without vitiligo.....she is wonderful!

 


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As we close our 2010 VITFriends time-together, everyone had an opportunity to share just what this weekend meant to them and what they had gained. We watched a short video to help to remind us to be gratefully for all that we have in our lives. The question that we were left to ponder is: Are we ready to FACE the world: http://www.youtube.com/watch#!v=ciYk-UwqFKA&feature=related

Finally, Shirley a VIT person from Medford, MA; prayed to God that our group may be strengthened and grow and reach more people.

 

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2009 - Conference COMMENTS


Below are the comments that we have collected and that we wanted to share with you:

1. Congratulations! The open sessions of SHARING were touching. The powerpoint presentation was informative. The organizers should be proud.

2. Millie's presentation was inspiring and informative. Valarie, thanks for your courage to bring VITFriends and families together, Love you. Be Blessed!

3. I enjoyed this time immensely and I found the information educating.

4. This conference was GOOD! It was helpful and supportive, Thank you!

5. I would LOVE to meet again. Great Conference!

6. Lets do this again. This was great!

7. Count me in for the 2010 gathering.

8. I would love to come back and bring more people. Where ever the destination, I will be there!

9. This is my first time coming to a VITFriends gathering and I loved it and I will be back next year.

10. We must do this annually. CONGRATS on your first VITFriends conference.

11. Valarie and Roy, you've opened a door that cannot be shut.

12. Meeting in D.C. would be a nice destination. Maybe we could schedule time with the Dermatology Dept. at Howard University Hospital.

13. Thank you for this conference. I was afraid to attend, but knew deep inside that it would do me good to attend.

14. This conference has been an eye opener for me. I will look deeper within.

.....as we closed our 2009 VITFriends time-together, president Valarie gave a string of pearls to everyone and asked that we give it to someone in the circle and share words. Words of how you've enjoyed this meeting and also the time with that FRIENDS.  This was a very moving time! Although the pearls shared were NOT real, the words shared were all so real and so also were the TEARS that flowed....

 

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