VITILIGO Friends
A Vitiligo Support Community of FRIENDS
PRAY for a family....
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Is VITILIGO too hard to handle? Would you like for someone to PRAY for you or with you? Would you like someone to PRAY for a particular situation that you are dealing with? Please let us hear from you at: vitfriends01@aol.com. Please share your prayer request with us. We would be so happy to respond to you via email. Our desired goal for 2009, with the financial SUPPORT of our Friends, is to obtain a 800 number where we can talk directly with you and PRAY for your needs. God be with you!
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A Vitiligo story from Bronx, NY - -
Our beloved son David was a kind, sweet and sensitive single young man of twenty-five with a very bright future ahead of him. In the early fall of 2007 he was diagnosed with vitiligo and tragically, less than a year later, on July 15, 2008 he chose to end his life. Nothing will ever be the same for our family. The world feels like a different place without David. But together we have resolved to continue because we know that is what David would want.
In David’s loving memory, we offer his story in the hope that it can educate and bring awareness to other families of children and young people with vitiligo. We have painfully learned that vitiligo is not just a simple skin disorder that can be easily treated or covered up with make-up. But rather that it is an incurable and often chronic medical condition that affects the whole person, including your loved one’s mental health. Vitiligo can result in significant psychological distress, major clinical depression and tragedy. It is imperative that families of children and young adults diagnosed with vitiligo are aware that initial and ongoing mental health screening and evaluation are just as important as the dermatological treatments currently offered to persons with this condition. Your loved one’s life may very well depend on early diagnosis and appropriate treatment of depression and/or other co-occurring mental health disorders.
Your PRAYER Request
Hello,
My name is Sabrina and I was just diagnosed with vitiligo. I am so scared and don’t know what to do. I feel like my life is over. I see on you website that family and friends are the key to surviving or coping with this disease. I don’t have any family and my friends just don’t understand. I am contemplating if life is worth living. Will you please pray for me. I need help!
Thank you
March 20, 2009
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Sent: Wed, 27 May 2009 9:44 pm
Subject: vitiilgo
My name is amily and im 17 years old. I've had vitiligo for 9 years now and each year my vitiligo spreads more and more. It gets very tough as no one understands the pain and suffering i go through because of tihs disorder. Being south asian , the pressure i feel gets worse as i grow older. My parents worry that if it spreads to my face i wont be suitable for marriage, future career opporunities, or a successfull life. I've tried talking to friends and family but they never seem to understand the mixed emotions and feelings your being put in. I also tried talking to my parents but it gets hard because i know seeing me with this condition causes them pain. Sometimes im up at 2 am hearing my mom cry, praying to God for me to heal. I am a very optimistic person, but vitiligo has affected my self-esteem and life so much. I have so much potential that i've been mussing out on because of this. Now that its summer, sometimes i even miss days of school because i hate wearing t-shirts ..and i get so self-conscience with the other people around me. I know my friends dont mind , and i dont really care what people think..its mostly hard for me. I just cant seem to accept it..when i see other teens who have perfect skin and so much great stuff and not appreciating it..i envy them and i wish i wouldnt feel that way. All i want is to gain my color back, so my mom is happy again..so i can stop hearing her painful cries, so that i can enjoy going to parties and wearing dresses, so that no one is embarassed to be with me, so that i have self-confidence to do the things i want to do. I always think , maybe this MY a test from God, to see if i can get through it..and thats what i've been telling myself for years now. Sometimes i see repigmentation and then sometimes it gets worse. I just want my vitiligo to dissapear, and cope with it. Its affecting my life so much. please keep my family and i in your prayers. please.
-with love Amily
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In sorrow...Be a friend....PRAY!
From: Mariana.... .I lost my son on September 18, He died suddenly but peacefully in his sleep. He was 20 year old. I still can not make any sense out of it. Everything that I hoped for, worked for and worried is irrelevant now. I do not know how to continue to live. Thank you so much for your comforting letters. I really needed them, being a foreigner in US with no extended family close by. I am reading a lot now about life and death. And everything less than death seems so small and eventually reversible. Death is the only event here on Earth, that is irreversible and leaves no choice. Thank you again for your prayers and warm words. They mean a lot to me. I find comfort to read your sweet posts to me. It is in pain and suffering we find the best people. Death of a child is the highest price to pay for spiritual growth but I did not have any choice. I am trying to go to each day one hour at the time. Thank you all very much, I love you.
Our Presidents Response: Deuteronomy 31:6........Be strong and courageous. Do not be afraid or terrified because of them(DEATH, PAIN, VITILIGO, FUSTRATION, SADNESS, LOSS) because God WILL be with you; he will never leave you nor forsake you." My heart and my PRAYERS are with you. I pray that as folks read your story, that they would STOP right where they are and pray for you. I pray for the PEACE of GOD to be with you. I love what you said.... "Death of a child is the highest price to pay for spiritual growth but I did not have any choice. I am trying to go to each day one hour at the time."
I have NEVER walked in your shoes, but I think your are correct.......Yes, That's correct...just like our VITILIGO...we have NO CHOICE in the matter. If GOD needed an ANGEL and HE chose your son, we just have to accept that as HIS will. It's hard, when you think of the WHY factor, but we MUST accept it as GODS will. Just know that HE does every thing well. There is a message, a lesson in this and it's not just for you...but see what is happening here....there is a lesson for ALL of the readers of this story. My love and blessings to your family.
A Thought to Ponder:
'The will of God will never take you where the Grace of God will not protect you.'
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